Midwives should tick the ‘repeat’ box on the card and send the blood spot card to the newborn screening laboratory following the usual process. Offer parents or carers SCID screening as part of a repeat blood spot sample. Baby needs a repeat sample, by which time the parents or carers have moved into a non- SCID screening area. Scenario 3:įirst blood spot sample taken in a SCID screening area. Action:ĭo not offer the parents or carers SCID screening as part of the repeat blood spot sample and do not provide information about SCID. Baby needs a repeat sample, by which time the parents or carers have moved to a SCID screening area. Scenario 2:įirst blood spot sample taken in a non- SCID screening area. Send blood spot card to the newborn screening laboratory following the usual process. Action:ĭo not offer parents or carers SCID screening as part of the blood spot sample. However, they move to a non- SCID screening area before their baby has blood spot screening. Parents or carers initially lived in a SCID screening area and had SCID information before their baby was born. The following scenarios are to help blood spot sample takers. Most scenarios in which families move after a baby is born are straightforward. The BCG vaccine should be given at about 28 days of age – by which time SCID results will be available. The BCG provider is responsible for checking the SCID screening result before giving the vaccine. Babies who have a ‘ SCID suspected result’ should only be given BCG on the advice of a specialist. This is necessary because the BCG is a live vaccine and can make the treatment for SCID more complicated.īCG should only be given to babies who have a ‘ SCID not suspected’ or ‘ SCID not offered’ result. Eligible babies are immunised, in line with the policy outlined in chapter 32 of the Green Book.įrom 1 September 2021, there will be a change to the age at which parents or carers are offered the BCG vaccination for their baby. Areas offering BCGīCG is a selective neonatal programme. There is no need for a second SCID screening sample if the initial sample was taken in the community, regardless of the gestation at birth. Where a repeat congenital hypothyroidism ( CHT) sample is needed on discharge, the same blood spot sample can be used for this and the second SCID sample. The laboratory will request a second sample, if one is needed. does not have SCID or another condition (baby discharged)Ī small proportion of babies born at less than 37 weeks who have been screened for SCID and are still in hospital will need a second sample at 37 weeks corrected gestation or on discharge, whichever is sooner.has another condition affecting the immune system (needs further tests).The flow cytometry test will confirm if the baby: Most flow cytometry results will be available the same day. The specialist immunology team will contact the parents or carers and invite them and their baby to attend an appointment within 2 working days.Īt the appointment, an immunology specialist will examine the baby and offer the parents or carers a blood test (flow cytometry) for their baby. The newborn screening laboratory will contact the specialist immunology team if the blood spot shows ‘ SCID suspected’ within about a week of taking the initial blood spot. Most babies will get a ‘ SCID not suspected’ result which means it is very unlikely they have SCID.Ī ‘ SCID suspected’ result means it is more likely, but not certain, that the baby will have the condition. It does not require any additional blood spots. Screening uses the same blood taken from the heel prick newborn blood spot screening test. Parents and carers can decide if their baby will have screening for SCID. Please refer to the SCID parent information during discussions and make sure you have completed the SCID e-learning module.
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